Fast forward - we got the absolute best possible outcome. A virus lodged in my head interfering with the information my brain was getting from my eyes and ears. It was scary for sure, but in every way ended up better than expected.
A few things worth noting:
Zoe and Mia, you are capable of sleeping past 6:20AM!!! Do it more often, will ya? It seems to be the case only in an emergency, when I'm having babies, or when I have to wake up very very early for work.
Scott was a rock star. First, he turned on the humor and it worked for me. When I called to tell him the cat scan was clear, he responded in his best Arnold Schwarzenegger voice "It's not a tumor." He helped lighten the mood in every way, especially given some less than ideal hospital circumstances. He was attentive to the kids who were engaged in play dates and, other than Sophie, never saw me when things were scary.
Some lessons learned/reinforced:
Friendly trumps pretty everytime, and competent is way better than both! Hear that nursie? No thank you for leaving me without a call button, for leaving me in the bathroom alone unable to move, for sending me home with two dozen heart monitors on me, etc. etc. etc. Next time, spend less time putting on make up in the morning and more time getting your head and heart in the game for work.
If you don't know the answer to a question, don't answer it! How is it helpful to tell someone, "No, this medicine absolutely won't interfere with breastfeeding" when you don't know? Nurses, please get better information and don't mislead patients. Good thing I had back up informers.
Birth planning training works in several situations. It absolutely helped with Scott's advocacy for me. He knew to make sure that the right people got the right information at the right times.
You lose your rights when you call 9-1-1. This isn't a bad thing, just a reminder. None of the dozen EMT's entering my home cared that I had three kids sleeping, no one wanted to stop and talk about whether any particular procedure was necessary, etc. This is a good thing in an emergency, and the EMT's thought they were likely dealing with a stroke patient, and time is of the essence. When we got in the ambulance with Scott trying to tell the EMT one last detail as they shut the door on his face, I said to the EMT, "you'd be nervous too if you had 3 small kids and thought your wife was having a major medical event." He at least smiled.
When Zoe was born, I remember trying to think through various scenarios that could come up and interfere with my ability to nurse her. Usually work events were what I played out and had to accommodate, but every so often I'd think about a medical event. I could never sort those out as well. In this situation, I wasn't clear enough to even think about nursing Sophie until later in the morning, but even then, I couldn't control my body well enough to manage it. The doctor said they'd likely not have answers for a little while, but that there was a medication they could start me on that would help the mobility problems I was having. We didn't know if it was ok for breastfeeding moms, but I would likely have to take it for up to 10 days, effectively ending my nursing relationship with Sophie if it turned out to be hazardous to breast milk. That was not how I wanted it to end.
Scott brought Sophie to the hospital, and I was able to nurse her before we made the medicine decision. She was thankfully very still, Scott brought a stuffed animal for her to hold so she didn't keep pulling at all my wires, and Scott positioned her and moved her when needed. We got very lucky that we found a "Pat-approved" medication for me, and I was able to nurse again later that night.
Here's to a very happy ending.